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In the Blink of an Eye: Dalton's ALD Journey #2020

In the Blink of an Eye Dalton s ALD Journey Dalton was diagnosed July with adrenoleukodystrophy a genetic metabolic disorder that attacks the myelin sheath of the neurons in the brain It literally robs these boys of their vision hear

  • Title: In the Blink of an Eye: Dalton's ALD Journey
  • Author: Jennifer Lindsey
  • ISBN: -
  • Page: 180
  • Format: Kindle Edition
  • In the Blink of an Eye: Dalton's ALD Journey By Jennifer Lindsey, Dalton was diagnosed July 13, 2016 with adrenoleukodystrophy, a genetic metabolic disorder that attacks the myelin sheath of the neurons in the brain It literally robs these boys of their vision, hearing, motor skills, mobility, speech, ability to swallow, and eventually leads to death A bone marrow transplant can stop the progression of the disease if successful, but doDalton was diagnosed July 13, 2016 with adrenoleukodystrophy, a genetic metabolic disorder that attacks the myelin sheath of the neurons in the brain It literally robs these boys of their vision, hearing, motor skills, mobility, speech, ability to swallow, and eventually leads to death A bone marrow transplant can stop the progression of the disease if successful, but does not reverse the damage already done He was a perfectly normal 10 year old boy before We had no clue The only reason we had an MRI was because he was having hearing issues in May I was thinking it might either be a brain tumor or a processing disorder so we did the MRI to be on the safe side Second worst day of our lives At that point they sent us to Riley in Indy, who or less gave us a death sentence We were then several days later pointed in the direction of the University of Minnesota Masonic Children s Hospital, where we spent almost 5 months He had his stem cell transplant on August 29 which went beautifully He contracted the Epstein Barr virus in October, had to undergo chemotherapy, and then was diagnosed with acute grade 4 gut graft vs host disease around mid November They tried several treatments, which were unsuccessful, and he was sent home on his birthday, December 1 We were under home hospice care until December 13 when he passed Adding ALD to the Newborn Screening Panel could save hundreds of lives every year.

    • UNLIMITED BOOK ä In the Blink of an Eye: Dalton's ALD Journey - by Jennifer Lindsey
      180 Jennifer Lindsey
    • thumbnail Title: UNLIMITED BOOK ä In the Blink of an Eye: Dalton's ALD Journey - by Jennifer Lindsey
      Posted by:Jennifer Lindsey
      Published :2020-02-23T20:07:35+00:00

    1 thought on “In the Blink of an Eye: Dalton's ALD Journey

    1. Beautifully written A perfect way to learn about who Dalton really was I didn t get a chance to meet Dalton or know him before ALD but after reading this book I know about the wonderful boy he was You did a great job

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